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	<title>Done Bright! &#187; prostate cancer</title>
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		<title>In praise of online communities</title>
		<link>http://luminanze.com/blog/online-communities/in-praise-of-online-communities/</link>
		<comments>http://luminanze.com/blog/online-communities/in-praise-of-online-communities/#comments</comments>
		<pubDate>Fri, 15 May 2009 17:10:00 +0000</pubDate>
		<dc:creator>Elizabeth</dc:creator>
				<category><![CDATA[online communities]]></category>
		<category><![CDATA[social media]]></category>
		<category><![CDATA[prostate cancer]]></category>
		<category><![CDATA[support groups]]></category>

		<guid isPermaLink="false">http://luminanze.com/blog/?p=19</guid>
		<description><![CDATA[How many online communities do you participate in? I have trouble counting mine, separating the technology or service (Facebook, Twitter, LinkedIn, email servers) from the communities that come together via those services. But no matter how I look at it, I count mine about a dozen. Some are personal, some are professional, and some (mainly [...]]]></description>
			<content:encoded><![CDATA[<p>How many online communities do you participate in? I have trouble counting mine, separating the technology or service (Facebook, Twitter, LinkedIn, email servers) from the communities that come together via those services. But no matter how I look at it, I count mine about a dozen. Some are personal, some are professional, and some (mainly Twitter and Facebook) are a mix. They vary in their importance and durability in my life. Some have been with me for ages (the longest lasting being more than 15 years); others are very recent. Some have come and gone.</p>
<p>If you asked me which community is the most important to me right now, I&#8217;d be hard pressed to answer. But if you asked me which one was the most important throughout my years of participation, my answer is clear.</p>
<p><a title="The Circle, an online support group for prostate cancer patients and their loved ones (will open in a new window)" href="http://www.prostatepointers.org/circle" target="_blank">The Circle <img src="http://www.luminanze.com/images/new-window.gif" alt="(new window)" /></a> is an online support group for people who love someone with prostate cancer, and for the men themselves. I found The Circle after my husband&#8217;s hormone therapy had stopped working, and I was searching the Web for resources and information. For almost four years the other Circlers and I shared information, support, and hope; and for the last six months of Antonio&#8217;s life I emailed them almost every day, sometimes several times a day. Even during the two weeks when I lived in his hospital room, I always took time during my occasional brief visits home to update them on how he was doing and how I was handling it. They were my online family, and they understood.</p>
<p>I shared our journey because doing so was keeping me sane&#8230; Yet it turns out that my sharing was a two-way street. After Antonio died, I received many emails letting me know how much meaning these people had found in reading our story — even people with whom I had hardly corresponded at all.</p>
<p>The mail from women struck a special chord. &#8220;Sometimes I dread reading your posts,&#8221; wrote one, &#8220;because I know that one day I will be traveling the same path, and it scares me tremendously. But seeing you walk that path gives me hope, because now I know that it can be done.&#8221;</p>
<p>And here I was, thinking <em>they</em> were keeping <em>me</em> sane. But their messages told me that I was giving to them equally&#8230; and that deepened our connection and facilitated my healing.</p>
<p>Antonio died in the spring of 2001, more than eight years ago (I write this post on our wedding anniversary), and I stayed with the Circle about a year afterward. Prostate cancer is no longer a part of my everyday life, and I don&#8217;t need that support any more. But that doesn&#8217;t change its importance for me, nor does it lessen the fondness with which I remember the friends I made there.</p>
<p>Would I have managed without this support group? Maybe. Probably. Would I have managed as well? Absolutely not. Without a doubt, the Circle has been the most meaningful online community in my life so far.</p>
<p><span class="footnotes">Part of this post was taken from a talk I gave in 2006 to my congregation. You can <a title="Talk: Agreeing with the Pain of Life (will open in a new window, and scroll down because mine was the last talk in the set)" href="http://www.rruuc.org/index.php?id=191&amp;sermon=060625" target="_blank">read the whole thing <img src="http://www.luminanze.com/images/new-window.gif" alt="(new window)" /></a> on my congregation&#8217;s web site (scroll down to see my talk; I was last).</span></p>
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